Rocky will be in Marianjoy for 2 or 3 weeks getting his mojo back. Walking, sitting, standing and moving about on his own is critical if he is to be self-sustaining in all things once home. I will be there to supervise, aid and fill in as necessary with Rocky’s care going forward. But he will be expected to do most everything himself. That is important for his own health, both physical and mental.
Rocky’s health is quite good. Much better than the medical team expected. They are very happy with the outcomes so far. Tests are being done and plans are for radioactive iodine to be administered in three or four weeks. Six months or so in the future a radiation therapy regime may be initiated. This is designed to keep him cancer free for the long haul.
Meanwhile, speech therapy will be conducted downtown Chicago to teach Rocky to speak with the buzzer box (I know there’s a formal name for this, but I don’t remember it!). It takes practice to speak with the buzzer box. Also, shortcut communication methods will be included as we go along. Other therapies include cleaning and maintenance of the Larytube insert to his trachea, and daily replacement of the HME filter cap for the stoma. The Larytube needs cleaning three times each day. Another therapy is re-learning how to physically eat: chew, swallow and maintain a healthy diet. Cuisine options and preparations are yet another world of learning ahead.
The journey we began 13 days ago has only just begun. Months lie ahead, and then hopefully years of enjoyment of a new lifestyle. Stay tuned for outcomes as they appear.
Meanwhile, know that our thanks and gratitude for all your support is deeply appreciated. Now all we have to do is figure out how to pay for all of this!
July 18, 2019
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